Monthly Archives: August 2013

Lemon Aid

Now here’s something truly refreshing!


L to R: Owen Killius, Ryan Taylor, Hope Taylor, friend and organizer Grace Killius, Charlie Killius, Ben Taylor

Our friend Jill Taylor, mother of Hope, writes:

Grace, one of my daughter Hope’s friends, ran a lemonade stand for DSRTF this past weekend and raised $157. How sweet and wonderful is that?!  My daughter, Ryan, worked the stand with Grace the whole time in 98 degree heat.  They told every buyer it was for Ds research.


My heart was FULL, to say the least.

Ours, too. We send our heartfelt thanks to Grace, Ryan, and the entire crew of helpers who generously gave their time and efforts to support the work we do.  As Jill says, “It’s so representative of Ds touching typically developing kids, as well.”  These kids are an inspiration — thank you all for being a real force for good.

Colorado Couple Competed in 100-Mile Endurance Run to Support Research Down Syndrome

Participating in an endurance running event that spanned two days across rugged Rocky Mountain terrain, Siobhan and Dan Pritchard raised over $35,000 for Research Down Syndrome. 

Run with Siobhan_Siobhan Finished _Cropped

On August 17-18, the couple ran in the Leadville Trail 100-Mile Run. Over 900 runners competed in this legendary “Race Across the Sky”, 100 miles of extreme terrain, with elevations ranging from 9,200 to 12,600 feet. Siobhan was one of only approximately half the entrants who finished under the required 30 hours. Dan succeeded in reaching several time checkpoints, and completed 71 miles. “I will be back next year, and I will finish”, Dan said.

Run with Siobhan_Siobhan and James before raceThe Pritchards are parents to one-year old James, who has Down syndrome. Since his birth, the couple has strongly advocated for increased support of research that is directed toward developing treatments that will improve learning and communication in individuals with Down syndrome, and also address the increased incidence of Alzheimer’s disease.

Prior to the race, Siobhan reflected, “If there is anything I can do to help James succeed, then I want to push hard to give him these tools…open every door. I was thinking, what greater way to raise money and awareness of Down syndrome research than to run 100 miles. Sure, to some people this is crazy, but to Dan and me, this is just a small thing to what James and other persons with Down syndrome experience.”

After the race, Siobhan shared these thoughts, “Dan and I are so grateful for all the support, from our crew team and pacers, as well as from the Down syndrome community, the solidarity teams and all their donors. I ran the race with my heart on my sleeve, putting it all out there, knowing this was my one shot to make a statement for Down syndrome research. It was two days of perseverance and digging deep. Thinking, ‘It never always gets worse’, as I pushed through some tough moments. All these things are what James has taught me”. 

Run with Siobhan_Lemonade

Supporting this fundraising effort were RDS Runners’ teams and other backers nationwide. RDS Runners is a national program of runners and racing events supporting Down syndrome research. One fundraiser in solidarity with Siobhan and Dan’s effort was “Lemonade Stands for RDS” in which young Kaydence and Jaycee raised over one thousand dollars selling virtual glasses of lemonade to support their good friend James. RDS congratulates Siobhan and Dan on this remarkable achievement. Thank you for your ongoing advocacy of Down syndrome cognitive research. In addition, the foundation thanks all the Run with Siobhan teams and donors who joined in solidarity with this event.

The Run with SIobhan campaign is not ending with the completion of SIobhan and Dan's effort. Teams continue to form, running, walking or participating in any type of event in solidarity to support RDS and Down syndrome cognitive research.

Learn about forming a team or contributing to this remarkable event here:

Run with Siobhan_Team Falanga

                              Team Falanga Ran With Siobhan and raised $4,000!

LuMind Foundation 2013-2014 Grant Awards Exceed $1M

LuMind Foundation has provided over $9.6 million to advance Down syndrome cognition research.  Recipients of this year’s funding include researchers at :

Read more details about the awards in the research section of our website.