The RDS “Hall of Honor” for Down Syndrome Associations

It is encouraging  that more local associations are adding research support to their program services. Sizable contributions to RDS and Down syndrome cognitive research have been made by Alexander’s Angels of Long Island, Heart of Illinois Down Syndrome Association, Northern New Jersey Down Syndrome Alliance, Down Syndrome Association of Greater Charlotte, Down Syndrome Association of Central Texas, East Texas Down Syndrome Group and Greater Clear Lake Families Exploring Down Syndrome. Thank You!

Most recently, RDS President Bob Schoen received a donation from the Charlotte group, representing funds raised at their Nov. 9, 2013 321 Dash for Down Syndrome 5K Fun Run. The event was so successful, and fun, that DSAGC has planned another run for April 26! 

When all associations across the country begin following this lead, national support for Ds research will be fundamentally re-stated, leading to significant increases in funding and even more rapid progress of this remarkable medical initiative.

RDS can assist your organization in making a commitment to support research. Please reach out to RDS at info@researchds.org . It would be a privilege to meet with your association members and share the exciting progress of Down syndrome cognitive research.
Thank you so much for your continued assistance to the Down syndrome community!

Colorado Couple Competed in 100-Mile Endurance Run to Support Research Down Syndrome

Participating in an endurance running event that spanned two days across rugged Rocky Mountain terrain, Siobhan and Dan Pritchard raised over $35,000 for Research Down Syndrome. 

On August 17-18, the couple ran in the Leadville Trail 100-Mile Run. Over 900 runners competed in this legendary “Race Across the Sky”, 100 miles of extreme terrain, with elevations ranging from 9,200 to 12,600 feet. Siobhan was one of only approximately half the entrants who finished under the required 30 hours. Dan succeeded in reaching several time checkpoints, and completed 71 miles. “I will be back next year, and I will finish”, Dan said.

The Pritchards are parents to one-year old James, who has Down syndrome. Since his birth, the couple has strongly advocated for increased support of research that is directed toward developing treatments that will improve learning and communication in individuals with Down syndrome, and also address the increased incidence of Alzheimer’s disease.

Prior to the race, Siobhan reflected, “If there is anything I can do to help James succeed, then I want to push hard to give him these tools…open every door. I was thinking, what greater way to raise money and awareness of Down syndrome research than to run 100 miles. Sure, to some people this is crazy, but to Dan and me, this is just a small thing to what James and other persons with Down syndrome experience.”

After the race, Siobhan shared these thoughts, “Dan and I are so grateful for all the support, from our crew team and pacers, as well as from the Down syndrome community, the solidarity teams and all their donors. I ran the race with my heart on my sleeve, putting it all out there, knowing this was my one shot to make a statement for Down syndrome research. It was two days of perseverance and digging deep. Thinking, ‘It never always gets worse’, as I pushed through some tough moments. All these things are what James has taught me”. 

Supporting this fundraising effort were RDS Runners’ teams and other backers nationwide. RDS Runners is a national program of runners and racing events supporting Down syndrome research. One fundraiser in solidarity with Siobhan and Dan’s effort was “Lemonade Stands for RDS” in which young Kaydence and Jaycee raised over one thousand dollars selling virtual glasses of lemonade to support their good friend James. RDS congratulates Siobhan and Dan on this remarkable achievement. Thank you for your ongoing advocacy of Down syndrome cognitive research. In addition, the foundation thanks all the Run with Siobhan teams and donors who joined in solidarity with this event.

The Run with SIobhan campaign is not ending with the completion of SIobhan and Dan's effort. Teams continue to form, running, walking or participating in any type of event in solidarity to support RDS and Down syndrome cognitive research.

Learn about forming a team or contributing to this remarkable event here: http://www.crowdrise.com/RunWithSiobhan

                              Team Falanga Ran With Siobhan and raised $4,000!