It is encouraging news that the Eunice Kennedy Shriver National Institute of Child Health and Human Development has communicated that it will lead the establishment of a Down Syndrome Consortium, which will provide a forum regarding current research on Ds and continued implementation of the NIH Research Plan on Down syndrome. The meeting will be held in Bethesda on September 29. The consortium that will be formed will include self advocates and family members of individuals with Down syndrome, the medical/research community, foundations and other stakeholders.
Now more than ever, the NIH wants to hear your voice, and this consortium will be ready to listen. Contact us at firstname.lastname@example.org