Research Down Syndrome Partners with the United States Air Force Marathon

Research Down Syndrome (RDS) will be partnering with the United States Air Force and its USAF Race Weekend being held in Dayton, Ohio on September 13-15. The foundation’s RDS Runners Program has runners entered in the marathon, half-marathon and 10K runs. This event is one of many charity partnerships RDS has established with races across the country.

Let Your Voice Be Heard

In 2007, the Down Syndrome Research Plan was released. As the plan stated, its purpose was to build upon ongoing NIH-supported research relating to Down syndrome to reflect the changing lives of individuals and families affected, and to take advantage of emerging scientific opportunities. By organizing the research objectives into groupings according to subject areas and timeframes, the plan served to inform the Down syndrome community of NIH’s goals for moving ahead in this area, fostering collaborations between NIH and other agencies and groups. Five years later, the plan is now in need of evaluation and updating.  As part of this process, NICHD and the Trans-NIH Down Syndrome Working Group has issued a Request for Information(RFI). This RFI is an invitation to comment on the Down Syndrome Research Plan. It is asking from feedback from the public concerning the effectiveness of the Plan, its accomplishments, and its remaining gaps, and will welcome suggestions concerning new future research objectives. Responses will be accepted until October 17.

A Partnership to Study Biomarkers of Dementia in Down syndrome

A public–private partnership to establish biomarkers of dementia in Down’s syndrome could aid the development of preventive therapies for the dementia associated with both Down’s syndrome and Alzheimer’s disease, based on the apparent common pathogenic role of amyloid precursor protein in the two conditions. Learn more in the journal, Nature. To obtain a copy of this paper, you need only register on the Nature website.This work is ongoing as a collaborative effort with RDS grantee, the University of California San Diego Down Syndrome Research and Treatment Center

A public–private partnership to establish biomarkers of dementia in Down syndrome could aid the development of preventive therapies for the dementia associated with both Down’s syndrome and Alzheimer’s disease, based on the apparent common pathogenic role of amyloid precursor protein in the two conditions. Learn more in the journal, Nature. To obtain a copy of this article, you need only register on the Nature website.

This work is ongoing as a collaborative effort which includes RDS grantee, the University of California San Diego Down Syndrome Research and Treatment Center.

National Pediatric Research Network Act Passes in Subcommittee

One of the great advocates in Washington for advancing research for Down syndrome and pediatric disorders, Congresswoman Cathy McMorris Rodgers (R-WA), announces Subcommittee passage of bill, HR 6163, the National Pediatric Research Network Act (NPRNA).