DS-Connect® Challenge a Huge Success – Thank You!

thank you girl pigtails pink signIn honor of Down Syndrome Awareness Month in October, we asked you to help complete the circle on research by registering with Ds-Connect® or spreading the word about the importance of the registry. When we began working with NIH, who runs the registry, to develop the scope of the challenge, we learned that 100 people joining during one month was a big jump for the registry. We decided to aim high and picked 125 as our target number. Then we added a $100 per person challenge offered by one of our co-founders to be doubled if we hit 125.

And boy did you rise to the challenge. 

By the time the calendar flipped to November, 226 people joined the registry in the month of October! We exceeded the goal by more than 100 people! THANK YOU!

And since more than 125 people joined, the founder’s donation to LuMind Foundation was doubled so we received a donation of $200 per person. That’s $45,200 for research, plus the data you’ve supplied to help unlock the mysteries of Down syndrome.

We also want to thank our friends – supporters and affiliate groups who helped spread the word about the challenge on social media, at Buddy Walks and with emails. We want to especially acknowledge the International Mosaic Down Syndrome Association (IMDSA) who held a research retreat for all families with a Down syndrome member (not just a mosaic diagnosis). Their retreat on October 3-5 jump started the campaign with more than 30 people registering that weekend.


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