NIH Launches Down Syndrome Patient Registry

Connecting Families and Individuals with DS to Researchers

ds-connect-imageWe’re gratified and excited to pass along the news that the NIH has launched its national registry specifically for people with Down syndrome, DS-Connect. This centralized information clearinghouse has been created to facilitate communication among families, researchers, clinicians, and patient groups, and will be crucial, says DSRTF’s Chief Scientific Officer Dr. Michael Harpold, to facilitating and supporting new clinical studies and trials for the benefit of people with DS. We look forward to the enhanced information sharing it will allow, and we thank the NIH for its continued service to the DS community. Visit DS-Connect now!

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