NIH Establishes Down Syndrome Patient Registry

The NIH announced on October 20 that the contract has been awarded to establish a new Down Syndrome Patient Registry. The registry will allow people with Down syndrome or their family members to enter contact information and health history into a secure, on-line database. This will facilitate connections between individuals with Down syndrome and researchers.

RDS recognizes the contributions of the NICHD and the Down Syndrome Research Consortium, led by Dr. Yvonne Maddox, NICHD deputy director, for making this happen.