The National Institutes of Health has joined with organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition. Read full press release.
Per Dr. Yvonne Maddox, Deputy Director, NIH Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), “A single, comprehensive forum will make the research effort to address Down syndrome more effective, minimizing duplication of effort and capitalizing on the knowledge of those with the greatest experience in the field”.
RDS will participate as a consortium member. The establishment of a Contact Registry is the first order of business.