DSAGSL Offers a Challenge

We are so excited to report a $10,000 donation from the Down Syndrome Association of Greater St. Louis (DSAGSL). The DSAGSL made the pledge during our Annual Appeal/Giving Tuesday – doubling their impact for cognition research!

IMAG0738Thank you DSAGSL!

According to DSASL Executive Director Jeremie Ballinger, “DSAGSL’s families have long been interested in research – especially in cognition research that allows people with Down syndrome to extend and sustain a high quality of life. For the first time, we are backing up this sentiment with a financial commitment, and member input was overwhelming that we direct our initial gift toward LuMind. We applaud LuMind’s research results, and we are especially impressed that LuMind devotes such a high percentage of its funding directly to research.”

The DSAGSL also has something for other Down syndrome affiliate organizations – a challenge!

dsagsl logo01_noBKGR_sm“We challenge all other Down syndrome organizations – regardless of size – to support research, and we encourage them to include LuMind in their giving.  It’s well worth the investment for this and future generations of people with Down syndrome,” said Ballinger.

Giving during our Annual Appeal still takes advantage of our 1:1 match for gifts $1000 or more. Please consider LuMind Foundation in your giving plans.

Thank you to DSAGSL – and all the Ds affiliate organizations that support research!

LuMind in the News: Foundation strives to enhance lives of people living with Down syndrome and Alzheimer’s

Thank you Mary Pritchard, a reporter with the Community Advocate. Mary heard about our Race for Research Road Rally from last June and was interested to learn more about our organization. Thank you Mary for taking such time and care in writing the article.

Read the full article.

Stretch Those Donation Dollars

MC910217106We are often asked about programs that let our supporters do more with their donation. Here are some ways to have a greater impact on Down syndrome cognition research.

Take advantage of our 1:1 match for gifts of $1000 or more during our Annual Appeal – We know it can be a stretch to reach $1000, but imagine the impact when you do!

Holiday and milestone gifts – Many supporters ask their friends and family to donate to us instead of receiving a holiday gift. We have a variety of e-cards to send so you can honor a loved one or be remembered yourself with a gift to LuMind Foundation.

Recurring gifts – Planned giving allows you to make a commitment to our organization on your schedule. Just check recurring donation on our donation page to set up a recurring gift.

Corporate matching – Many companies will match charitable contributions made by their employees. Corporate matching is a wonderful way to increase your gift to LuMind Foundation allowing us to fund even more research. For some organizations we are still listed as Down Syndrome Research and Treatment Foundation (DSRTF) – that’s still us.

Giving programs – Remember us during planning giving opportunities with the Combined Federal Campaign (12089) and United Way. For the CFC, we are still listed as Down Syndrome Research and treatment Foundation.

Stock transfer - We are able to accept stock dividends as a donation. Just get in touch with us for the information.

Shopping programs – Many organizations, like Amazon Smile, have ways to send a portion of your shopping to a charity. We are registered with several sites, sometimes still as DSRTF. Check it out before you shop!

Corporate partnerships – We enjoy support from a number of corporations to sponsor events or programs. Check out our events page or get in touch with us for ideas!

Planned giving – We are able to work with you to set up legacy gifts, life insurance, and securities to benefit cognition research. Just ask.

Events – Consider hosting an event that benefits the LuMind Foundation. We have lots of ideas and toolkits for all types of events. Pool your giving resources by encouraging your friends and family to donate – and have a fun time!

Let us know what you need to stretch your donations dollars. We can register with new sites and companies or provide nonprofit information so you can make your donation go further. Get in touch at LuMind@LuMindFoundation.org.

Research Update at Stanford


(left to right) LuMind Foundation co-founder Jim White, Stanford University’s Dr. Ahmad Salehi , LuMind Executive Director Carolyn Cronin, and Stanford University’s Dr. Craig Heller.

The LuMind Foundation returned to its Bay Area roots on November 2, 2014 with a well-attended research presentation at Stanford University.  More than sixty people filled the room to listen to Drs. Craig Heller and  Ahmad Salehi discuss new developments and achievements in their research. Jim White, one of the founders of what was then known as the Down Syndrome Research and Treatment Foundation, was also on hand to greet participants and talk about their commitment to Down syndrome cognition research.

Jim White

Jim White, one of LuMind Foundation’s co-founders, addresses the crowd at the event.

Nutrition and sleep were among the topics discussed. Sleep apnea remains a challenge for many individuals with Down syndrome and is tied to a number of health issues, including diabetes, high blood pressure, stroke, and heart problems.

Dr. Salehi also talked about an asthma drug, formoterol, which in large doses has been shown to improve learning and memory in a mouse genetically engineered to mimic Down syndrome in humans by carrying extra copies of genes. At lower doses, this drug is already FDA approved to treat asthma and chronic obstructive pulmonary disease (COPD).


Speakers Dr. Heller (pictured) and Dr. Salehi are both LuMind Foundation-funded researchers.

Because over 70% of individuals with Down syndrome suffer from sleep apnea, it is reasonable to think that respiratory issues are common in this population and therefore treatments that target both cognition and respiratory problems, like formoterol, are especially interesting to researchers.

At the conclusion of the presentation, Dr. Heller led a tour of his lab, which was especially popular with the children in attendance.

The LuMind Foundation remains committed to supporting this and other research to find treatments that will improve memory, speech, and learning in people with Down syndrome.  We would like to thank Drs. Heller and Salehi and Jim White for sharing their insights with us. We also appreciate Sara Wernikoff’s hard work organizing the event. And of course, thank you to everyone who attended the presentation.

One eXtra Reason to Live.., Love… Hope

10616106_752353038145920_6718788575169535603_nThank you to the amazing folks who came out for a night fun in Southern California on November 1. LuMind Foundation was founded in California and since then we’ve expanded our footprint to reflect that people with Down syndrome around the world can benefit from cognition research. We were happy to get back to our roots with the annual Southern California benefit gala: “One eXtra Reason to Live … Love … Hope.”

Attendees viewed exotic cars in a casino atmosphere and learned more about Down syndrome cognition research. They also had chances to bid on amazing silent auction items including restaurant and vacation packages, a car-themed experience from Tesla, and many gifts from local businesses. We are so thrilled to see support is still strong in California after ten years! Thank you!

Enjoy pictures from the event below!

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Ellen thanking GT

Thank you for making our first real #GivingTuesday a grand success!

We’re not sure how widespread #WowWednesday is as a hashtag trend, but it reflects how we feel after the response on #GivingTuesday.


This was our first push on Giving Tuesday and we weren’t sure what to expect. December 2 fell during our Annual Appeal, so we asked for your help in sharing our message, then supplied graphics across our social media sites for you to share, retweet, comment and like. Others created their own posts and shared pictures and #UnSelfies of the people who inspire them.

You kept us busy all day monitoring our social platforms, answering phone calls, and trying to thank and acknowledge everyone who shared or retweeted one of our messages or a message about us. Some people we weren’t able to thank, mainly due to privacy restrictions and platform fickleness – and of course human error may have played a role, too. Please know that we appreciated your help.

So many people responded, some even across multiple platforms and numerous times throughout the day. We received responses to our volunteer opportunities and thank everyone for offering their time and talent.

We had a modest financial goal and we are honored to say you exceeded our expectations. Thank you to everyone who donated. 

We also had awareness goals related to letting new people know how close we are to making cognition therapeutics for people with Down syndrome a reality. Of all the donations we received on Giving Tuesday, a third were from people making their first gift to LuMind. Many gifts were also $1000 or more and will be matched.

We are still in our Annual Appeal, so hopefully you will continue to spread the word about our message and support cognition research, especially as we are so close! Our 1:1 match for gifts $1000 or more is still on, so tell people a investment in cognition research you give with your head as well as your heart.

#Wow. And #ThankYou #Grateful and #WeLuvOurSupporters. 

Give With Your Head As Well As Your Heart

gt-give-love-150x150Many people who support our foundation have a loved one with Down syndrome, so you may think their commitment to supporting cognition research is solely an emotional decision. But making a donation to LuMind Foundation is a smart investment, too.

  • In just ten years, LuMind Foundation has achieved unprecedented results – identifying nine drug targets and leading to four clinical trials.
  • We understand the drug discovery and development process and keep the end goal – effective, safe drug therapies – in sight.
  • Strong collaborations with both academia and biopharma bring together all the pieces necessary for making therapeutics a reality sooner. When the research is ready for the next step, so are all the players.
  • We engage with Ds community to educate on research, obtain participants for clinical trials, and learn the issues of importance to them.
  • We have a deep network with scientists in Ds, cognition research, and Alzheimer’s disease research, too, and encourage collaboration between them.
  • We are internationally focused. We look for the most transformative and best research, anywhere.
  • Our strong ties with the National Institutes of Health allowed us to help develop the DS-Connect® registry and participate on the DS Consortium project – to promote the health and research for the Ds community.
  • We insist on a high quality team and Scientific Advisory Board to identify the most promising lines of research.
  • Thanks to an ambitious vision and your donations, together we are making a significant difference in the world of Down syndrome research and Alzheimer’s disease research.

Bottom line: We have an outstanding track record and our targeted strategy has proven effective and efficient. 

Whether or not you have a loved one with Down syndrome, supporting LuMind Foundation and cognition research allows you to give with your head as well as your heart. Thank you.

Visit our Annual Appeal or Giving Tuesday pages to make a donation today. Donations $1000 and more are matched – gifts of all sizes are appreciated!