We are so fortunate! Our founders had a vision ten years ago when they started LuMind Foundation. They saw the possibilities that would be created if cognition was increased by 15% in people with Down syndrome.
Since public funding for Down syndrome research was very limited (and still is), they made the decision to create a pipeline of private funding to engage researchers. Nine drug targets and four clinical trials later, their vision – more independence – is closer to becoming a reality.
Thank you, Jim and Patty White, for your gift. You have inspired so many people with your vision!
On October 15, LuMind Foundation Executive Director Carolyn Cronin attended a research presentation by the Cure Alzheimer’s Fund at the Harvard Club in Boston.
The presentation featured Rudy Tanzi, Ph.D., of Harvard Medical School/Massachusetts General Hospital and chairman of Cure Alzheimer’s Fund Research Consortium, talking about the state of Alzheimer’s research today. For Carolyn, a lot of the discussion was about familiar territory.
“Dr. Tanzi’s presentation focused on the same parts of the brain – the hippocampus, frontal cortex, cerebellum – that we do in our Down syndrome research updates,” said Carolyn. “This meeting reinforced the reasons why we work in collaboration with those in the Alzheimer’s field. It’s exciting to think how those individuals in the Down syndrome community who are participating in clinical trials could benefit the Alzheimer’s community, too.”
To hear the presentation, there’s a video to watch. To learn more about Dr. Tanzi’s research, here’s an article with more information.
“It was so interesting to see the correlation between the research LuMind Foundation is funding on Down syndrome cognition and the Alzheimer’s research,” said Carolyn. “It just proves you never know where the next research breakthrough will come or the impact it could have.”
In honor of Down syndrome Awareness Month, we wanted to revisit this article by LuMind Board Member Margie Doyle that Maria Shriver featured on her website promoting inspiration stories for architects of change.
Margie and her family inspire us and we hope they will move you, too! Thanks so much for all you do, Doyle family!
Read Margie’s words of hope as she relates the importance of Down syndrome research. Read the full piece on Maria Shriver’s website here.
Probably everyone would have preferred sunny warm weather, but spirits were the only thing not dampened at the Alexander’s Angels Buddy Walk October 11 on Long Island.
Esther Gomez-Nieto, president of Alexander’s Angels and her board members put together a great day with music, food, and fun. A bit of humor was provided by Kyle (pictured to right with Esther) who quipped it was a “Down pour for Downs!”
The Buddy Walk went on and the rain finally cooperated to leave only cloudy skies as the teams gathered in celebration. With so much fun – the event even made the local news!
Thank you Alexander’s Angels for inviting us to be part of your day and for being long-time committed supporters of cognition research.
Dad Anthony and friends watch as Troy gives an interview about the ROMP.
NYC had a beautiful day for the ROMP FOR RESEARCH on October 12, 2014, attracting more than 1000 people. Enjoy some photos from the day of fun in the sun to raise funds for cognition development research for people with Down syndrome.
We sincerely thank event founders Mary Costello, Steve Lazare and Anthony Providenti for their continued support by organizing and running the 9th annual ROMP. All the details are still being tallied, but the event easily (and colorfully) raised more than $150,000 for Down syndrome cognition research.
ROMP fun means a lot of sliding, climbing and bouncing!
Who needs more proof of a good time than Louies chocolate smile?
LuMind Foundation brings light to the science of cognition research. The ROMP adds color, fun and so much support.
Steve Lazare checks in with Dom and Jackie who welcomed everyone to the ROMP.
All the ROMPERS left with smiling faces.
Thank you Beckett’s Buddies!
It’s Buddy Walk season and while the LuMind Foundation can’t ease your tired feet or promise sunny weather, we can help communicate the importance of cognition research to your community.
If your organization supports research, we thank you and have gathered some materials for you to download and use at your Walks. Visit our events page and download the materials from our left menu sidebar:
- About LuMind Foundation – the story of our founders and all we’ve accomplished in the last 10 years
- Who We Fund: 2014-2015 – with our latest research grants
- Take the LuMind DS-Connect challenge – outlining the donation we will receive when 125 people sign up for the DS registry during the month of October
Thank you for communicating the importance of Ds cognition research. We appreciate the help of our friends!
And thank you to the affiliate Down syndrome organizations who have invited us to speak at their Buddy Walks. We’ll be represented at walks in New York, Washington, South Carolina and California.
For today’s Throwback Thursday, we look back just a few months ago to World Down Syndrome Day at the United Nations on March 21, 2014.
Enjoy all the talks or fast forward ahead to about 2:34.12 for the Down syndrome cognition research portion of the day’s talks moderated by LuMind Executive Director Carolyn Cronin with presentations from:
- Dr Yvonne Maddox, NICHD – Down Syndrome Research and Advocacy: Improving Lives Together
- Dr William Mobley, University of California San Diego – Enhancing cognition in people with Down Syndrome
- Professor Antony John Holland, University of Cambridge – Understanding the link between Down syndrome and Alzheimer’s disease: developing preventative treatments
- Debora Seabra, Self-Advocate – Healthcare must be inclusive – Article 25 of UN Convention on the Rights of Persons with Disabilities